2008 Updated Estimate of Prevalence of Brain and CNS Tumors by Central Brain Tumor Registry of the United States (CBTRUS)
While CBTRUS has compiled information about how many people are diagnosed with primary malignant and non-malignant brain tumors (incidence), it does not collect data on survival. The last estimate of how many brain tumor patients who are currently alive who have ever been diagnosed with a brain tumor (prevalence) was for the year 2000. In order to get updated prevalence information, the Brain Tumor Society has sponsored a CBTRUS study. Adult and pediatric primary brain tumor prevalence will be estimated for the U.S. population for 2010. This will tell us how many people are currently living with a brain tumor diagnosis.
The study is being run by Bridget McCarthy, PhD, Project Coordinator for CBTRUS and a Research Associate Professor in epidemiology at the University of Illinois, Chicago. CBTRUS is directed by its President, Carol Kruchko.
Read a summary of this study here.