Were you or was your loved one recently diagnosed with a brain tumor?
Whether you are a patient or caregiver, one of the first things you may choose to do is gather information and find out how to get support. Yet this can seem overwhelming. Many people say, "I don't even know where to start!" This section is designed to help guide you through gathering information one step at a time. It covers the following topics:
The following ten questions provide a starting point for what you may want to ask your healthcare professional. Be sure to have a notebook ready to write down the answers.
- What is the name and grade of my tumor? Is it a primary or metastatic tumor?
- Is my tumor benign or malignant?
- What are my treatment options?
- What are the possible side effects of each treatment option?
- Which treatment would you choose if you had my tumor?
- If I am more interested in quality of life rather than how long I live, which treatment would you recommend?
- Are there any clinical trials for which I am eligible and, if so, what questions are those clinical trials asking?
- If I wanted a second opinion from another neuro-oncologist or neurosurgeon, who would you recommend?
- What factors do you take into consideration to predict how I am going to do?
- How can I reach you or someone else in your office if I have questions after today?
As you begin to gather information, it may be helpful to review NBTS's publications, which you can find here. The following are some especially helpful publications:
It is common to wonder where to go for treatment. Resources for Finding Brain Cancer Treatment Centers is designed to help you find information on a brain tumor treatment center that can provide the services you may be seeking.
If you are unsure of what things you should look for in a treatment center, you may want to read the fact sheet entitled Issues to Consider When Choosing a Brain Tumor Treatment Center.
As you learn more about brain tumors, you may also find it helpful to connect with other patients, survivors, and caregivers. The Find Support section of NBTS's website can help you find information on how you can connect to others. Everybody is different in how they reach out for support, but it is helpful to know that you are not alone, whether you are a patient, survivor, or caregiver.