small default large Printer Friendly Send to friend

My Father: Phillip C. Hahn

by Lori

My father, Phil Hahn, was diagnosed with a glioblastoma brain tumor on October 24, 2010 at the otherwise healthy age of 64. He lost his heroic battle on March 16, 2011, and we miss him terribly.

Mom and Dad were out dancing on the dance floor at our cousin's wedding October 1, 2010.  In fact, they were one of the only ones left dancing when they asked for couples married 40 years or more to go up on the dance floor! They looked incredible. However, it was just 3 weeks later we found out about my father's diagnosis due to some strange symptoms he was experiencing. Things changed in an instant. That instant was when we saw the scan of a golf-ball sized tumor above his right ear.

Our lives have been completely altered and, unfortunately, we aren't alone. I was reminded of that when we walked on April 30th for the GET YOUR HEAD IN THE GAME national kick-off event. I was so proud and excited to have raised over $1800 in 10 days for the Phil Hahn Team! I found out about the walk sort of late in the game, but was happy to get involved the moment I heard about it.  It was emotionally very difficult to do, and I found myself crying a bit during the day, but we are so glad we did it. We want to walk again next year and become a part of this national Movement to raise awareness about brain tumors.

I met so many amazing people during the walk.  They had such amazing stories to share. Their stories helped strengthen the reason why we were there and our purpose for walking and fighting this dreadful disease. At the walk, I met Chris who has incredible guitar and gospel music to share (did I forgot to mention he has had 2 brain tumors?). He said he would have never met his future wife to be if it weren't for his brain tumors. I also met Caity who created cookbooks to sell at the walk. She was just gorgeous and at 24 years old. She told me how difficult it was in that people didn't understand why her face looked different, etc. I understood her pain and knew exactly what she was talking about. She looked as if she was comfortable in talking with me too, because I understood.

While dealing with my father's devastating illness and trying to cope, I began to journal on the caringbridge.org site so that others that live out-of-state could easily get updates on my father's status because his condition was changing every day. My caringbridge posts turned into a personal story about my father for the grandchildren so that they could remember his journey through my eyes. I was amazed and surprised by how many friends and relatives responded to my site and told me I had a gift to write. They encouraged me to continue writing or blogging. With my friend Angie's strong suggestion that I continue to blog, she created a website for me to use as a tool to continue my writing. I took her suggestion and continue to blog at the new site about coping with grief and other issues. Now I am trying to become a part of a national movement to help fight brain tumors and make a difference.

National Brain Tumor Society

Stay Connected

Sign up for monthly eNews and receive information on research updates, brain tumor news, and upcoming events.

   Please leave this field empty