National Brain Tumor Society is committed to identifying and responding to the needs of the brain tumor community.
Periodically, National Brain Tumor Society conducts surveys to better understand the patients, survivors, loved ones, and health professionals whom we serve. We use our findings to remain attuned to the community, refine our services, identify opportunities for collaboration, and increase awareness.
In 2007, we released a groundbreaking report about the financial impact of a brain tumor diagnosis entitled, "Nobody Can Afford a Brain Tumor." The first study of its kind, the report revealed that the financial impact of a brain tumor is often devastating and life-changing. We found that brain tumor-related expenses can force even employed and well-insured patients into financial crisis. More information about this report is available here.
In January of 2009, we released findings from a national survey of over 1,400 patients, survivors, and their loved ones. The report, "A Needs Assessment of Brain Tumor Patients, Survivors, and Loved Ones" summarizes our key findings into three main need areas:
- Diagnosis and Survivorship Needs
- Caregiving and Family Needs
- Needs in the Health Care Setting
Community input is essential to our work at National Brain Tumor Society. We are thankful to the families who have taken the time to share their experiences and participate in our studies.
Reports Available from National Brain Tumor Society
- Nobody Can Afford a Brain Tumor: The Financial Impact of Brain Tumors on Patients and Families
- A Needs Assessment of Brain Tumor Patients, Survivors, and Loved Ones