National Brain Tumor Society’s public policy agenda seeks to drive systemic change, which will benefit the brain tumor community by advocating for resources and policies that will result in a better quality of life, and ultimately a cure for those affected by the disease. This public policy work complements our diverse and robust research initiatives, which are aimed at advancing new therapy developments.
The Patient Protection and Affordable Care Act, signed into law in 2010 by President Barack Obama, will require the implementation of “Essential Health Benefit” packages, which will designate a minimum set of covered services for insurance plans sold in Exchanges across the country
National Brain Tumor Society advocates for any and all benefit packages to include specific and comprehensive coverage to accommodate the vast and costly medical needs of the brain tumor community.
To support the diverse needs of the brain tumor community, the Organization has submitted letters to the health insurance commissioners of all 50 states, as well as United States Department of Health and Human Services Secretary Kathleen Sebelius detailing the essential treatments and services that brain tumor patients and survivors need to improve their quality of life and increase overall survival.
For example, National Brain Tumor Society is asking Federal and State policymakers designing essential health benefit plans to ensure affordable coverage for patient-administered, anti-cancer medications, like oral temozolomide, as well as to recognize that benefits need to reflect the permanency of the diverse health issues experienced by brain tumor patients and survivors.
Additionally, National Brain Tumor Society, with input from brain tumor patients, survivors, caregivers, and our Medical Advisory Board, developed a robust list of essential treatments, therapies, and services the community needs affordable access to within the Affordable Care Act’s ten categories, including:
- Ambulatory patient services
- Emergency services
- Laboratory services
- Chronic disease management
To view our official press release on the issue, click here
To view a full list of all recommended services, click here