Download a copy of our new report highlighting key findings from our survey about coping with a brain tumor diagnosis.
What are the biggest challenges in coping with a brain tumor? What information and support needs exist?
These are a few of the questions that National Brain Tumor Society asks as part of our charge to identify, understand and respond to the needs of the brain tumor community.
In 2008, we invited brain tumor patients, survivors, and their loved ones to participate in a survey about coping with a brain tumor diagnosis. Over 1,400 individuals and families responded, sharing with us their experiences and helping us to identify key areas of need.
“A Needs Assessment of Brain Tumor Patients, Survivors and Loved Ones” summarizes our key findings about needs in three main areas:
- Diagnosis and Survivorship Needs
- Caregiving and Family Needs
- Needs in the Health Care Setting
You can also learn more about the financial impact of a brain tumor diagnosis from our 2007 report, “Nobody Can Afford a Brain Tumor.”
National Brain Tumor Society, through its Patient Services department, serves as a resource for information, referrals, and support for more than ten thousand families each year. We are extremely grateful to the hundreds of families who participated in our study. Community input is essential as we work with the brain tumor community to develop resources that better address the needs of patients, survivors and their loved ones.