September 23, 2014 - Pediatric Brain Tumors: Resources and Research

Join our Community Chat September 23, 2014 from 2PM-3PM ET (11AM-12PM PT).
You can join at 2pm by clicking here or going to this site: https://braintumor.zoom.us/j/805763413

National Brain Tumor Society’s Community Chat is a series of open, online video discussions where you will be able to ask questions of experts and thought leaders within the brain tumor community.

Want to know the latest in pediatric brain tumor research? Where to go for support after diagnosis of a pediatric brain tumor? What to ask before enrolling in a clinical pediatric brain tumor trial? Join us for our September Community Chat!

Stay abreast of what is happening in the field of pediatric brain tumor research, speak with researchers, and chat with the parent of a pediatric brain tumor survivor in our September Community Chat. During the one-hour video chat, our guests will offer an overview of some of the promising areas of pediatric brain tumor research, where to find clinical trials and what questions to ask when participating in a trial, and parent resources for the brain tumor community.

You will also have an opportunity to ask questions by video and text during the chat. Don't miss your chance to find out about new resources and research, and ask your questions!

Attend our Community Chat and:

  • Hear about promising pediatric brain tumor research initiatives.
  • Find out resources for parents of brain tumor patients, and questions to consider during diagnosis, treatment, and post-treatment.
  • Learn about where to find pediatric brain tumor clinical trials, and what questions to ask before enrolling.

The community chat is a live video discussion focused on a different area or topic of interest to the community. All community chats are moderated to facilitate an open dialogue and participants will have an opportunity to ask questions and interact with others through our text-based chat room.


About our Speakers:

Jaime Banks
Cancer-Mom and Pediatric Brain Tumor Advocate

Jaime Banks is a former communications consultant/writer/editor. Jaime's son was diagnosed with a malignant germ cell tumor at age thirteen. His treatments included intensive chemotherapy, proton beam radiation, surgery, and tandem bone marrow transplant. Ten years later, her son is 23 and remains in remission.

Since her son's recovery, Jaime has dedicated herself to raising awareness and supporting other cancer parents.

Carrie Treadwell
Chief Research Officer, National Brain Tumor Society 

Carrie Treadwell joined the Organization in 1998 and serves as the Chief Research Officer at the National Brain Tumor Society, as well as Managing Director of the Defeat GBM Research Collaborative, a subsidiary of the Organization. In these roles, Carrie interacts with leading researchers and institutions to guide the development and success of key research initiatives including overseeing the Organization’s grant process. Carrie also serves as a patient advocate for the National Cancer Institute’s Brain Tumor SPORE Program.

Suzanne Baker, PhD
Member, St. Jude Faculty
Co-leader, Neurobiology and Brain Tumor Program

Suzanne Baker is a researcher focused on the identification and functional analysis of genetic changes driving childhood high-grade gliomas. Dr. Baker received her Ph.D. in Molecular Biology and Human Genetics from The Johns Hopkins University, and completed postdoctoral training at the Roche Institute of Molecular Biology.

Dr. Baker joined the faculty in the Department of Developmental Neurobiology at St. Jude Children’s Research Hospital where she is currently a Full Member in the Department of Developmental Neurobiology and the Co-leader of the Neurobiology and Brain Tumor Program. Dr. Baker also serves as co-chair of the Scientific Advisory Board for the National Brain Tumor Society.

Scott L. Pomeroy, M.D., Ph.D.
Bronson Crothers Professor of Neurology
Director, Intellectual and Developmental Disabilities Research Center Harvard Medical School
Chair, Department of Neurology
Neurologist-in-Chief
Boston Children's Hospital

Scott L. Pomeroy is one of the world’s leading experts on pediatric brain cancer. He has won numerous awards for his research and clinical care of children with embryonal brain tumors and he was the first recipient of the Compassionate Caregiver Award of the Kenneth Schwartz Center, which honors a Massachusetts caregiver who displays extraordinary compassion in caring for patients and their families. Through the Children’s Oncology Group, which unites 250 medical centers throughout North America, he leads an international effort to standardize tumor sample collection and to make genomic analysis a routine step in treatment planning for children with brain cancer.

Dr. Pomeroy is the Chair of the Department of Neurology and Neurologist-in-Chief of Boston Children's Hospital, the Bronson Crothers Professor of Neurology at Harvard Medical School, and the Director of the Eunice K. Shriver National Institutes of Child Health and Human Development funded Intellectual and Developmental Disabilities Research Center of Boston Children’s Hospital and Harvard Medical School.



Sabine Mueller, M.D., Ph.D.
Pediatric Neurologic Cancer Specialist

Dr. Sabine Mueller is a pediatric neuro-oncologist who specializes in caring for children with brain tumors and related genetic syndromes. Before completing medical school, she worked as a scientist, director of genomics and a project leader for a brain tumor program at AGY, a biotechnology company in South San Francisco.

In her research, she studies treatments for children with brain tumors and improving the long-term cognitive outcome. Mueller earned a medical degree at the Universitat Hamburg School of Medicine and earned a Ph.D. in biochemistry and molecular biology in collaboration with AGY. After a pediatric residency at Massachusetts General Hospital in Boston, Mueller completed a fellowship in pediatric oncology at UCSF. She is an assistant clinical professor of neurology, neurological surgery and pediatrics.


May 22, 2014 - Frankly Speaking About Brain Tumors

View the replay of our Community Chat!

Thank you to our guests, Allison HarveyLisa McDermottLainey Titus Samant, and Terri Armstrong for answering community questions.