Brain tumors can have serious impacts on a patient’s quality of life, including impaired cognitive and motor functions.
While our primary goal is to find treatments that allow patients to live longer, and ultimately find a cure, we are also committed to bringing treatments to patients that help them retain a sense of self and quality of life.
Brain tumor patients and caregivers have a right to have their views known about what they want in future treatments being developed and brought to market. And, together with the Jumpstarting Brain Tumor Drug Development Coalition, we plan to deliver a report to stakeholders including policymakers, drug developers, researchers, and clinicians, about the needs and concerns of the brain tumor community.
This is where your help is vital. In order for us to accurately represent the needs and concerns of the brain tumor community to key stakeholders, we ask that you complete this brief, anonymous questionnaire.
- June 13, 2014: National Brain Tumor Society responds to the House Committee on Energy and Commerce's request for comments on their 21st Century Cures Initiative. The initiative will take a comprehensive look at what steps Congress can take to accelerate the pace of cures in America. To read the letter, follow this link.
- February 2014 Public Policy & Advocacy Update
- December 2013 Public Policy & Advocacy Update
- November 2013 Public Policy & Advocacy Update
- October 2013 Public Policy & Advocacy Update
- September 2013 Public Policy & Advocacy Update
- August 2013 Public Policy & Advocacy Update
- June 20, 2013: NBTS weighs in with the Appropriations committees in both the House and the Senate as they work on the Fiscal Year 2014 budget. In the letters, we ask the House and Senate Appropriations committee's Defense subcommittees to continue to support the Peer Reviewed Cancer Research Programs, which includes pediatric brain tumor funding. We also ask the House and Senate Labor, Health, and Human Services subcommittees of Appropriations to support critical research funded through the National Insittutes of Health (NIH), the largest funder of brain tumor research in the country.
- June 2013 Public Policy & Advocacy Update
- 5/31/13: NBTS joins 94 organizations in asking Congress to support funding for the National Institutes of Health (NIH) during National Cancer Research Month.
- 5/14/13: Twenty members of the Alliance for Childhood Cancer, including the National Brain Tumor Society, submit a letter in support of the Childhood Cancer Survivors' Quality of Live Act.
- May 2013 Public Policy & Advocacy Update
- March 2013 Public Policy & Advocacy Update
- February 2013 Public Policy & Advocacy Update
- January 2013 Public Policy & Advocacy Update
- 12/21/12: NBTS joins 11 partners from the Patient Equal Access Coalition (PEAC) in asking HHS to ensure that the Essential Health Benefit designs in states' Exchanges provide affordable access to oral chemotherapy.
- 5/30/12: NBTS, American Association for Cancer Research (AACR) and 100 other cancer organizations and research institutions urge Congress to make NIH funding a top priority in FY2013
- NBTS joins coalition of 35 partners strong to insist the House and Senate Appropriations Committees support funding for the National Institutes of Health (NIH) and the Centers for Disease Control and Prevention (CDC).