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Latest Public Policy News
Stay up to date on the latest in brain tumor research funding, access to care, and advocacy efforts across the community.
From the Blog
November 20, 2014
Guest Blog: Why I want you to join us on Dec. 2
August 10, 2010, was a Tuesday. I got confirmation that what my mind and body had been telling me for months, was true. I had a brain tumor. It was a gift that I got the care I needed, and am here today. I got involved with the National Brain Tumor Society to connect with […]Read more |
November 17, 2014
Encouraging Results from Novocure Clinical Trial
Novocure, a company that creates medical devices to treat cancer, announced this weekend that their Novo-TTF-100A system (now being called Optune), in combination with temozolomide (also know as Temodar or TMZ), demonstrated improved survival in newly diagnosed glioblastoma multiforme (GBM) patients in a clinical trial, compared with temozolomide alone. The announcement was made at the […]Read more |
November 7, 2014
Can this treatment help me live a longer and better life?
Why was I asked to sit on a panel with two top officials from the U.S. Food and Drug Administration (FDA), two leading neuro-oncologists, an associate professor of neuropsychiatry, and an executive from the biopharmaceutical company, Genentech? Because, as a five-year brain tumor survivor and volunteer advocate with the National Brain Tumor Society, I want […]Read more |