Many voices.
United purpose.

National Brain Tumor Society brings together the best of research, patient support, and advocacy to be a single, comprehensive resource for the entire brain tumor community – patients, families, researchers, and medical professionals. We have a national presence, with offices on both coasts and activities and influence around the United States.

• find, fund, and follow meaningful research.
• support and empower members of the brain tumor community.
• advocate for change in public policy and federal funding.
  

• We revised our grant structure to fund the research with the most promise to impact the field and result in new therapies for patients faster. Our new grant structure provides the capability to fund research proactively in biotechnology companies as well as academic institutions throughout the year at a range of funding levels.

• In 2009, NBTS gave over $3.5 million in grants to fund impactful brain tumor research across North America. Complete details are published in our 2009 Research Programs awards booklet.

• Our new Pediatric Initiative is investing in projects that advance the field of childhood brain tumor research in two critical areas: comprehensive molecular profiling and developmental neurobiology.

• We continued to participate in various funding collaborations. One example is in the effort shared with our colleagues in the Brain Tumor Funders Collaborative. Together we funded $1.1M in research  for the development of effective methods for monitoring  pediatric and adult gliomas and their response to investigational therapies. These biomarker monitoring methods include a range of approaches.
  

• Our Patient Services team responded to more than 1,000 inquiries each month from patients, caregivers, and others who are coping with this challenging and isolating diagnosis.

• We further expanded our efforts in peer-to-peer networking allowing patients, families, and caregivers to connect during every stage of the treatment journey. Our Peer Support Network has 169 members who connect and support patients and caregivers. Network members represent 29 types of diagnoses and 33 states.
  

• We offered patient conferences in four cities across the country, providing vital information, support, and connection to others in the brain tumor community.

• We continue greater use of technology and interactive tools to deliver the most complete and comprehensive information on brain tumors and which can be accessed 24 hours a day by families in need.

• We are working to increase the access and availability of our Caregiver Training program to better support those who care for brain tumor patients by developing an online version.
  

• NBTS represented the brain tumor community on Capitol Hill, at the National Cancer Institute, and the FDA, where we testified to encourage expanded treatment options for brain tumor patients. With our colleague organizations in the North American Brain Tumor Coalition, we continue to advocate for policy changes and long-term funding to benefit patients and survivors.

FINANCIAL INFORMATION
NBTS takes great pride in our financial efficiency and accountability. We work to maximize the value of every dollar we receive. The graphic illustrates that 84 percent of our expended resources – among the highest of all philanthropic organizations with a national focus on a health concern - support our patient services, research, and advocacy initiatives across the U.S. 

Independent Accreditation
We encourage you to investigate before you donate. Click on the links below for independently verified information about NBTS’ finances and responsible use of funds.

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NBTS’ IRS Letter of Determination

• IRS Letter of Determination
• 501(c)(3) Status Determination

NBTS IRS Form 990
Specific information about NBTS’ finances is available on our Form 990, the information return that tax-exempt organizations file annually with the Internal Revenue Service. Please note the Form 990 is labeled based on the starting date of the financial year, but contains information through September 30 of the following year. This is the same time period as NBTS’ fiscal year, which is labeled based on the ending date of the financial year. For example, the 2009 Form 990 and NBTS’ fiscal year 2009 both contain financial information for the period October 1, 2008 to September 30, 2009.

Contributions to NBTS are tax-deductible to the extent permitted by law. NBTS is a nonprofit 501(c)(3) organization (EIN/tax ID number: 04-306-8130).

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