Search Results

smallmediumlargeprintmail
Name: Chickie
Age: 53
Diagnosed in: 1991
Treatments: Surgery
Tumor Type: Meningioma
Notes: Tumor on right optic nerve. Part of tumor is still there. Has some memory loss. No add'l treatments; MRI every 5 years. Has good advice for people with vision problems. Working part-time and doing well.
Medications:
contact me
Name: Janet
Age: 38
Diagnosed in: 2000
Treatments: Embolization and craniotomy (2000); craniotomy (11/2004); 6 weeks of intensity modulated radiation therapy (IMRT) in 2005
Tumor Type: Meningioma
Notes: Original tumor in left sphenoid wing, optic nerve and carotid artery involvement.  Peripheral vision loss regained, some light & noise sensitivities, word search difficulties, short-term memory.  Double vision, balance issues post-craniotomy #2.  Speaks Spanish.
Medications: Allergy to Dilantin detected after 2nd craniotomy
contact me
Name: Marisa
Age: 32
Diagnosed in: 2006
Treatments: Surgery, radiation, Temodar, vaccine clinical trial
Tumor Type: Glioblastoma Multiforme (GBM)
Notes: Tumor in right temporal lobe (size of an orange). Has some left peripheral vision loss. Currently on vaccine clinical trial at Duke. Also used nutritional supplements, acupuncture and yoga for symptom management. Had neuropsychological testing. Attends 2 local support groups. Working full time and feeling well.
Medications: Keppra
contact me
Name: Tom
Age: 56
Diagnosed in: 1999
Treatments: 3 surgeries, radiation, SRS, Gliadel Wafers, BCNU
Tumor Type: Glioblastoma Multiforme (GBM)
Notes: Tumor in right parietal lobe. Had recurrence 2 years after diagnosis, and suspected recurrence (turned out to be scar tissue and radiation necrosis) one year later. Has minor loss of peripheral vision on left side, no other deficits. Had low WBC counts, switched anti-seizure meds a few times, is now stable. On 6-month MRI schedule, feeling well, working full time. Married with three young adult children. Doctors have told him that he is "cured".
Medications: Currently takes Keppra; tried other AEDs
contact me
Name: Teresa
Age: 40
Diagnosed in: 2000
Treatments: Awake craniotomy, radiation and many chemo drugs: BCNU, CCNU, Temodar, Vincristine, Procarbazine, Cisplatin, Irinotecan, Tamoxifen, Thalidomide
Tumor Type: Glioblastoma Multiforme (GBM)
Notes: Tumor in left frontal lobe, tangerine-sized. Has short-term memory loss, and word-finding difficulty. Side effects from chemo drugs include tinnitus and change in hormone levels. Developed AML (acute myelogenous leukemia) in 2008; a rare, but serious side effect of chemotherapy treatments. Is currently undergoing treatment, but is doing well. Is married with two teenagers.
Medications: Decadron, Zofran, Promethazine, Zoloft, Celebrex
contact me
View All   1, 2 ... next >>




smallmediumlargeprintmail

  • Receive Information on Upcoming Events, Brain Tumor News and Treatment Updates.