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Name: Joyce
Age: 64
Diagnosed in: 1996
Treatments: Surgery
Tumor Type: Meningioma
Notes: Tumor in right sphenoid wing. Vision affected. Partial complex seizures under control, short-term memory loss. Over 35 years experience as RN. Has experience counseling. Volunteers, tutors children in reading and works with teens at her church. Enjoys tai chi, helps balance, arthritis, memory. Willing to call people from other states; she has unlimited long distance phone service.
Medications: Topamax and Keppra
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Name: Sheryl
Age: 32
Diagnosed in: 2006
Treatments: 3 surgeries, radiation therapy, chemotherapy (Temodar, CPT-11), Avastin, stereotactic radiosurgery (Cyberknife)
Tumor Type: Glioblastoma Multiforme (GBM)
Notes: Tumor in left frontal, originally thought migraines, started seeing double. CT showed tumor, scheduled for surgery, but got a second opinion. Had surgery and graded tumor an astrocytoma III. Complications with infection, had second surgery, then radiation, Temodar and later Cyberknife. Tumor recurred, had a third surgery and found it had upgraded to GBM. Went on Avastin/CPT-11 for a year. Feels good, harder time concentrating, has two young kids and is married. Has experience fighting with insurance and wants to, "Let others know they are not alone".
Medications: Keppra
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Name: Paul
Age: 51
Diagnosed in: 2004
Treatments: Surgery
Tumor Type: Meningioma
Notes: Tumor in sagittal sinus, originally lost vision in one eye and MRI showed tumor. Knows that the tumor has changed him, that he is "not the same person he was". Feels lucky, struggles with multi-tasking and sometimes feels "scattered". Is a graphic designer and owns a printing business and stationery store. Interested in a career change, either with counseling or social work regarding brain injury. Married and has two grown children and is hoping to "help in anyway possible".
Medications:
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Name: Lisa
Age: 43
Diagnosed in: 2003
Treatments: Craniectomy & VP Shunt
Tumor Type: Oligoastrocytoma
Notes: Tumor in cerebellum. After 3 years of "watch & wait", symptoms worsened - MRI showed a cyst near the tumor. Had craniectomy and shunt placed to relieve the pressure. Still has occasional pressure headaches. Works full time as HR Director, is married with 2 children.
Medications: Steroids (in the past - had problems with them)
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Name: Nina
Age: 41
Diagnosed in: 2008
Treatments: Surgery
Tumor Type: Cavernous Hemangioma
Notes: Always had bad headaches, got really bad, started to drop things, felt "dripping inside head". MRI showed bleeding tumor, was airlifted to a bigger center where she had surgery. Did not receive enough information on post-surgery and organized her own PT. She is a bit clumsy, sometimes experiences STM loss. Her family, community, and neighbors were very supportive during recovery. She currently teaches pre-school, but definitely "feels different". She has a, "Strong interest in helping others and wishes she had someone to talk when she was diagnosed."
Medications: none
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Name: Venu
Age: 38
Diagnosed in: 2000
Treatments: Surgery, Temodar (x2), radiation therapy
Tumor Type: Oligodendroglioma
Notes: Has coped with numerous side effects from surgery and medications; currently has one-sided weakness, seizures & fatigue. Has had occupational therapy, physical therapy, speech therapy and bio-feedback. Currently volunteers at NBTF office.
Medications: KeppraXR, Vimpat
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